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If you have not already tried to get help and advice, do so now. Some advisers may be able to help do some of this preparation for you. If you are lucky enough to find someone who can help with the preparation, make sure you are clear which things your adviser is going to do for you, and which you need to do yourself.

Manage your appeal


It is a good idea to sign up to the Manage your appeal service. This service enables you to keep track of how your appeal is progressing, and you can use it to upload evidence (including audio and video evidence if you want to). It will send you texts or emails to let you know that the DWP have responded to your appeal, to confirm evidence has been received, and when your hearing date has been scheduled.

If you asked for an appeal online and gave them your email address, you will have received an email with a link to help you sign up. If you did not, you can sign up by calling 0300 123 1142 Monday to Friday, 8:30am to 5:00pm or by emailing [email protected]. If you ask by email, you will need to include your child's National Insurance number, date of birth and postal address.  

Getting help


If you are not getting any professional help to prepare for the hearing, you might want to ask somebody else to help you. You may not need any help, but it might stop it from feeling too stressful. This is particularly useful if you are not very confident with paperwork or deadlines. If you do think it might be useful, think about who you could ask - do you have a family member, friend, or someone who helps you who is good with paperwork and organising things?


Support groups


Online and other support groups can sometimes be very helpful. There may be other people who have had the same problems getting DLA for their children, who can give you emotional or practical help. 

Help to appeal online

If you need help to ask for an appeal online We Are Group will help.
They can help with access to a device, or data, or provide guidance and reassurance on how to use the online service.
If you would like their help

  • phone the helpline on 03300 16 00 51, or
  • text FORM to 60777, or
  • email them at [email protected]


They will respond within 2 working days.

Read this guide!
Would give 100 stars if I could. We followed your advice and won our appeal within minutes of the hearing starting!

Jasmin

Very helpful! Thanks so much. Feel very prepared for our hearing now.

Nuala

Look through the big pack of papers that you were sent by the DWP explaining why they made the decision they did. Many people get very confused by the test cases at the beginning. Don’t let them put you off.  If you don’t have time to become an expert on all the legal ins and outs of DLA decisions, ignore these.

The most important parts are the bits about your child. Read through it and look for anything you don't agree with.

If there is a report from your child’s school, does it give a fair picture of your child? School staff tend to be wonderfully positive about children’s abilities and progress and sometimes the DWP fail to understand the context (for example, that your child is making progress but that this is because they receive one-to-one help or are in a specialist school). School staff have usually been accurate, but the limited nature of the form often leads to the DWP giving the wrong award.

Make a note of all the things that are wrong. If you can, say why they are wrong. You can include this in your statement to the tribunal. Also think about how you could get further evidence (from the school for example) that would give a fairer picture.

Check that everything you want the tribunal to read is in the papers. If anything is missing, send in a copy before the hearing (and keep a copy for yourself). Don’t assume that the appeal panel will have access to evidence used in previous claims. If it isn’t included in these papers from the DWP, the appeal panel won’t see it unless you send it in. 
 

For most people, the thing that is of most help is written evidence from their child’s paediatrician, support staff, or school staff. If your child sees a paediatrician, doctor at the hospital, psychologist, physiotherapist, an occupational or speech and language therapist, other healthcare professional, or has a social worker, evidence from them will often be very useful too. If your GP knows your child well, evidence from them is also likely to be very helpful.

The best evidence will come from people who know your child well and who understand their situation. If your child’s paediatrician or GP does not know them well, you should still ask them for evidence, but try to get evidence from other professionals who know them better. This could be another doctor, or other healthcare professional, or somebody who helps your child at school.

The most useful evidence will explain how your child’s illness or disability affects them, and the help they need. This is quite unusual, so your doctor or therapist may not understand that. Look at the section below. This is a guide for your child’s doctors, therapists, school staff, or anybody else writing evidence for them. When you ask them for evidence to support the appeal, show them this page. It will help them to write evidence that will be really helpful to you.

Before you ask anybody for evidence – read this!
You are appealing the decision the DWP made on a particular date (on the top of the letter). You need to prove how your child’s condition was at that time, not how it is now. If you are asking other people to write evidence make sure they know when the decision was made and understand that you need to prove how your child's condition was at that point.
 

Paying for medical evidence
GP's and other medical professionals are allowed to charge for evidence.

If your doctor suggests that he or she will charge you, tell them that you only need a brief note from them, and that it could be hand-written if this is quicker. Reassure them that it will only take the time of an appointment. Show them/send them a link to the page below - so that they are sure of what you need from them.  

If they insist on charging you, ask them instead for the last two years of your child’s medical records. They will give you this for free and it may contain some useful evidence. 

Evidence you already have


Think too about what evidence you already have. Do you have reports of physiotherapy, occupational health, or psychological assessments? Do you have copies of letters that the different doctors and therapists have sent to each other? Does your child have an Education, Health and Care Plan (EHCP). Did you have a needs assessment from the local council? They are likely to be very helpful.


Evidence from somebody that helps your child regularly


If there is somebody who helps your child a lot (this might be someone who helps them at school, a support worker, or paid carer), they may be able to write some very useful evidence too. Ask them to write a letter to the tribunal panel explaining what help they give your child and how often. Show them the guidance on page x - it may help them to remember everything.

If they would prefer, they can keep a diary of the help they give instead (see below).

Diary


You should think about keeping a diary of the extra help you give your child each day. It will help the tribunal panel to get a proper understanding of the situation. It is particularly helpful if your child’s condition isn't the same every day. Keep a diary for a month if you can (but a shorter time will also be helpful). It can be very brief. For example - 'Monday - Shaking very bad today. She needed help to fasten her clothes, and get downstairs. Couldn’t walk to school so had to take her in car. Needed soothing and physical help to get to car.’

If you are appealing a decision which relates to your child’s ability to walk it is a good idea to record how far they are able to walk without severe discomfort, and how long it takes them. The tribunal will often ask quite specific questions about how far they are able to walk.

Write a statement 


If you (or someone who could help you) are OK with writing, you should think about writing a statement. These can be very useful as they set out all the points you want to make, which means that you don't have to remember everything to say on the day. They also give the panel time to think about what you’ve said and why your child should be getting a higher rate, before they meet you.

For more advice on how to write a statement and what to put in it, see How to write a statement for a DLA appeal. You can also read Andrea’s statement about Alfie and see what she put in hers.  

Make notes of all the things you want to say on the day


This is really useful and also stops the hearing or the preparation for it from getting too stressful. Every time you think of something they got wrong or you don’t think they properly understood, make a quick note of it. Remember to take these with you to the hearing so that you can tick them off as you say them. This might be particularly useful if you haven’t written a statement. 
 

Excellent advice here. Particularly about getting professional evidence for my appeal. I was successful at my recent tribunal, thank you very much for your advice.

Darren


Send this page to the people you are asking for evidence from

This page is written for doctors, social workers, support workers, paid carers, teachers, occupational therapists, and other professionals who might be able to tell the appeal panel what they need to know. It explains how to write helpful evidence for this kind of benefit appeal.

Evidence from doctors and other professionals helps the tribunal to come to the right decision more than anything else. Your evidence doesn't need to be long or typed, but it would be most useful if it included everything you are aware the child concerned needs help with.

Whether a child is entitled to DLA is decided by how much help they need. They may not get this help, many people 'manage', but these benefits are based on help they should have in an ideal world.

This appeal is about a decision that was made on a particular date. Your evidence needs to be about how their condition affected them at that time.

If you are a medical professional, start by confirming any diagnosis and any treatment that they receive.

If you are not, start by saying what help you regularly provide for the child. Then you need to go into the detail. 

Going places

If they cannot walk even short distances without discomfort, or if they are very slow, please say so. If they need help to walk around school for example, please explain what difficulty they have and what help they need.

Equally, if they need more help than another child their age to go further afield to places that are unfamiliar, please say that. This might be help to stay safe or encouragement, prompting, or soothing.

Help at home or school

Next, look at the help they need in the home or at school. As far as you know, do they need extra physical help, prompting, or encouragement to:

  • get up or go to bed
  • eat meals and snacks
  • get washed and have a bath or shower 
  • go to the toilet
  • get dressed and undressed 
  • move about indoors
  • stay safe
  • communicate with other people (this includes reading, hearing, and speaking)
  • take part in leisure activities (playing with friends, going swimming, taking part in clubs or fun activities)
  • participate in all learning activities, including taking part in PE, Art or Music

If they can do any of these things on their own but it takes them a very long time, causes them pain, or may put them (or somebody else) in danger the law sees this as needing help.

Help during the night

Do they need help overnight, to stay in bed, go to the toilet, calm down if they get distressed, etc? If you are aware that they often have difficulty sleeping it will be useful to say that.

Danger

If you are aware that they have been hurt, or could have been hurt, as a result of their condition, you should say so. Perhaps they have fallen, had violent seizures, or self-harmed.

If you are aware of a time when they have hurt or posed a danger to somebody else, it would be most useful to include this.

Medication or therapy

Can you explain what help they need to take their medication, or do their therapy, and how often they have to take it/do it?

Fluctuating conditions

Lastly, is their condition always the same  or is it more debilitating on same days than others? If you know it is bad on some days but better on others, it would be useful to make that clear.

If you don't know about something

If you don't know how much help they need with something or think that they probably do not, it is best not to mention it. Their parent may have evidence from somebody else that knows more about this particular problem .

Read all the evidence through - does it support your case? If it doesn't, you don't have to send it to the panel (but if they ask if you had any evidence you didn't send them, you have to tell the truth). If you don't think the evidence is useful it may be worth going back to the person who wrote it and discussing it with them. Is there anything they can add?

If you've got useful evidence, upload a photo of it using the Manage your appeal service or photocopy it and send it into the HM Courts and Tribunal Service before your hearing. Send it as soon as you can as this maximises the chance of the DWP changing the decision in your favour which may mean you don’t have to wait for the hearing. 
 

Disclaimer

The law is complicated. We recommend you try to get advice from the sources we have suggested.

The cases we refer to are not always real but show a typical situation. We have included them to help you think about how to deal with your own situation.

Acknowledgement

This guide was written and produced by Advicenow. Thanks to the Ministry of Justice for funding this update.


Advicenow would like to thank all those who provided advice and feedback on this guide, particularly Jane Owen-Pam, Rachel Ingleby,  Jim McKenny, Yvonne Deal from Hertfordshire County Council,  and all the parents of claimants of DLA who made up our panel. Thanks also to Nicky Rees of Cystic Fibrosis Trust for peer reviewing this updated version.

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